I appreciate all of your patience with me, I now have a computer, but I am having a hard time getting the thing set up for internet. Go figure, right? That is why we paid extra for one on one support. I need someone to hold my hand and listen to me gripe when it works for them but not for me! But I know that you don’t really want to read about my technical troubles, that would be a different kind of blog, wouldn’t it? Also, note that I have posted two blogs today. I really need your help making some decisions, and I need as much feedback from you as I can possibly get, so comment either here, or my facebook page, or my email.
As I alluded earlier, we are throwing out the baby step terms for a while. Our girl is ready to fly. I will update you chronologically, so bear with me.
Friday they tried to downsize her trache, but they are going to have to anesthetize her before they can remove it, so we are still waiting for that to happen.
Still no word from the insurance people, so we are still waiting for that to happen.
Oh and one more thing, they are calling in a hand specialist to look at her fingers to see what the best course of action is for her fingers. I think she is ready for something to happen there. It will be good to know for certain exactly what the long term plan is. However, they have not come in as of yet, so we are still waiting for that to happen.
But, there are some mighty righteous people praying for Tammy, because once again, your prayers are “availing much.”
Even though they haven’t downsized the trache tube, they have put her on the nose candela. (Nurse friends, is that the right spelling? I am typing this, saving it to a jump drive and having someone else post it. I don’t have a dictionary. If it is wrong, please, let me know.) It is the clear tubing that she had before that most people associate with getting oxygen in the hospital. She is doing much better with it than she was with the trache collar. It had a huge blue tube attached and it hung around her neck, so it was a bother and pretty confining, so she feels “free-er” than before. Speaking of feeling free . . .
I think the last time I wrote, she was having one good day and then would be pretty tired for several more. She was having a hard time even sitting up on the side of the bed, and the farthest she had been able to walk was about 15 feet. Saturday she took a stroll right out the door all the way to the nurses station, rested for a few minutes and then walked back to her bed. She walked 52 feet! Now, she was dog tired, and took a nap that afternoon. She also took it easy on Sunday. But today, just to make sure we wouldn’t think it was a fluke, the girl walked 100 feet! Yes! Double from just two days earlier! Then, when she was “tired,” she sat in the wheelchair and scooted herself around the “loop” (the hallway that goes around the nurses station and the service elevators.) She said her calves were burning when she was done, but it sure felt good!
And, her oxygen levels stayed in the 90’s! That is a flying leap, dear friends!
Another thing I would like to ask you to pray about, Tammy’s blood sugar levels have been dropping in the middle of the night to an unhealthy level. This is mostly because of the meds she has been on, so it isn’t a long term problem. At least, at this point, we don’t have any reason to think it is a long term problem. However, since they are having to check her insulin levels regularly, they have noticed the fluctuation. She has been able to eliminate the need for the insulin or glucose shots (yes, both, depending on the day) she had been getting to keep her sugar levels happy shots most of the time, it is just the nights that are causing problem. Pray with me that she will stabilize, despite the meds and not have to be “poked” any more than absolutely necessary.
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